Getting a life altering diagnosis for you child is one of the most heart wrenching experiences a parent can endure. Our family was lucky in some ways for receiving our diagnosis when Finley was still a baby. We didn’t have to spend years searching for answers, doing test after test and appointment after appointment, wondering what the future would like, or if she would have a future at all. In other ways we weren’t so lucky. We were deprived some of that ignorant bliss, the time when we believed she would catch up with her peers and we could just enjoy her. We were in a fog of grief, denial, and…

Five years ago we bought this house with the dream that it would be our forever home. A place with enough space for our family to grow and stretch out. We had hopes of our daughters running and playing in the backyard. We imagined teaching Presley and Finley and our future Hadley to ride their bikes in the cul de sac. Finley would run down the stairs to tattle on her older sister. The girls would congregate around the table to drink hot chocolate after an afternoon of building snowmen. As they got older, they would watch movies in the basement with their friends and have bonfires in the backyard. …