The time was around one in the afternoon. I answered a call from a number I didn’t recognize. It was the genetics clinic. And even though they had told us it would take 4-6 weeks, they had gotten results on Finley’s genetic testing. They found a small deletion on her 18th chromosome that affected the TCF4 gene. That finding was consistent with Pitt Hopkins Syndrome. “Ok. So what does that mean for her?” ” Well first let me tell you that kids with this syndrome have a normal life expectancy. But…children will exhibit significant developmental and cognitive delay. It is unknown whether she will be able to walk in her…